Chemo Protocol Day 19. Tomorrow more intrathecal chemo (methotrexate) and a bone marrow biopsy. His platelets are up to 59,000 - so he won't need a platelet transfusion before the procedures. After that, it looks like the only thing left on his protocol is more daily steroids and one more dose of vincristine next Sunday. Today the doctors discussed the possibility that Ryan may go home soon after the last vincristine once they know his numbers are recovering. And, of course, depending on what the marrow biopsy shows.
At some point he'll be going to Dana Farber Canter Center in Boston.
Good thing we're nearing the end of this stint. In spite of Ryan's positive attitude and all the wonderful friends visiting, I think he's had enough of being cooped up in a hospital room. And yet we all know there is more to come.
Sophia is exhausted from her trip to Utah. Even though she had lots of help and they got everything done in record time, I think it was mentally and emotionally exhausting. She didn't sleep well in the hospital last night, and when she came home today she collapsed into bed and was sound asleep in seconds.
I finally got all of MeiLin's things out of the room Sophia and Ryan will be taking over, and got lots of things situated in her new "room" (our downstairs office) so it's more hers. We got rid of 3 laundry baskets of stuffed animals today. I took them to the stake picnic and first I offered a grandma that her grand daughter could take her pick. She replied that already had too many (no surprise there!). So I came up with an alternative plan. I just went around and told all the little kids there were free stuffed animals and they could take as many home as they wanted! Voila! Gone! Don't think I endeared myself to many moms.... Better on their shelves than mine!!!
Tomorrow we'll have a Family Home Evening in the hospital lounge with Ryan and the whole family. We're taking in some N'aulins red beans & rice - one of Ryan's favorites.
Sophia's off to bring him some food. He's getting pretty spoiled...........
---Barb
So you are the one that offered the stuffed animals to kids! I was wondering. Don't worry, when I get tired of them, they get sent to the Goodwill.
ReplyDeleteI thought about that, but MeiLin seemed reassured that her old friends all went to good homes!!!
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