Tuesday, May 8, 2012

Day 2

Tuesday, May 8th

Very early today the bone marrow biopsy was done.  I was concerned that it would be very painful, but Ryan said it just felt strange.  Less painful than the IV catheter inserted yesterday - which still annoys him since he can't turn his head without tugging on where it enters the skin.

Then a "MUGA" scan - to check the function and health of his heart before starting the serious chemotherapy
which can damage the heart.
Ryan's case was discussed at the hospital's Tumor Board's noon meeting.  All the various people involved with diagnosis and treatment - pathologists, radiologists, oncologists, etc.  His final diagnosis is Acute Lymphocytic Leukemia.  His will be in the hospital for a month, receiving 3 types of chemo plus steroids.  Ryan asked questions about the statistics and side effects.  He'll lose his hair, probably have some GI side effects.  It will wipe out most of his marrow, making his susceptible to infections and requiring isolation.

Reality hit.  Bald.  Sick.  Really sick.  What about living a long life with Sophia and having a family?   

I can't begin to imagine what Ryan must be feeling.  I was shaking as the oncologist layed out the details.

Steak dinner tonight and a visit from his little sisters before his immunity is compromised.  New port in the morning. 

I'm starting this blog so that all of us - but mostly Ryan - don't have to answer the same questions over and over, and yet keep all our loved ones informed of what is happening.

There may be times in the next few weeks that Ryan is too tired or too sick or it's too painful to discuss.  At those times, he can turn off his phone.  And when he talks to you, he will know that he can just enjoy talking to you without having to give a blow-by-blow. 

We still want to hear from all of you who love him.  And we really need and appreciate your prayers.

I'll try to update this daily while still respecting privacy when Ryan needs it.

Thanks for loving Ryan.  Please continue to pray for him.  He is about to embark on the battle of a lifetime.

3 comments:

  1. Hi. Im Rebekah Camblin formerly Rebekah Knackstedt... a friend of Ryans family. Just want you and Ryan to know that you both will be in our constant prayers and put on our temple prayer roll. I love Ryan and the Whalens and you all have my deepest sympathy and utmost hopes in this serious time of pain and trial. Stay strong!

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  2. Thanks Rebekah! So good to hear from you. We're feeling those prayers. I hope all is well with you and your beautiful family.

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  3. Hi Ryan, I was heartbroken when I learned of your diagnosis. We will pray for wisdom, strength and love to see you through this.

    I know you have some hard days ahead... but keep your mind focused on the future. You are going to beat this!

    And speaking of beating this, meet Milt:

    http://www.miltcentral.com/MC/MiltHome.html

    He was a young musician when he was diagnosed with ALL in 2004. He's now looking forward to celebrating his 10th anniversary since being diagnosed. He's proof that there is reason to be hopeful!

    Sending love and healing....

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